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Coalition Applauds National Academies for Moving Forward with NIH Assessment

The Coalition for Pediatric Medical Research applauds the National Academies of Science, Engineering, and Medicine for constituting a study committee to assess how the National Institutes of Health (NIH) can strengthen its support for pediatric medical research. The Coalition advocated for inclusion of the assessment as part of the final Fiscal Year 2024 spending package…
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Coalition, CHA Respond to NIH Reform Framework

The Coalition for Pediatric Medical Research – joined by the Children’s Hospital Association, submitted a detailed set of comments in response to the framework for reforming the National Institutes of Health (NIH) that was put forward in June by Energy & Commerce Committee Chair Cathy McMorris Rodgers (R-WA). The letter responds to several proposals included…
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Coalition Comments on Cures 2.0 RFI

The Coalition for Pediatric Medical Research has submitted a response to a request for information from Congresswoman Diana DeGette (D-CO) and Congressman Larry Bucshon (R-IN) on a Cures 2.0 bill. The Coalition engaged heavily on the bipartisan 21st Century Cures Act, enacted in 2016, and believes a Cures 2.0 bill presents an opportunity to address…
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Coalition Commends Bipartisan Congressional Letter to NIH Leadership on Recruitment of Children into All of Us Program

Washington (June 13, 2024) – The Coalition for Pediatric Medical Research applauded a bipartisan Congressional letter to National Institutes of Health (NIH) Director Dr. Monica Bertagnolli urging the NIH to move forward with recruiting children into the All of Us Precision Medicine Program and noting the consequences associated with further delays in child recruitment. The…
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Coalition Applauds Congress for Including National Academies Pediatric Research Assessment in Spending Bill

WASHINGTON (March 27, 2024) – The Coalition for Pediatric Medical Research applauds Congress for including within the final Fiscal Year 2024 spending bill (Public Law 118-47) a provision tasking the National Academies of Science, Engineering and Medicine (NASEM) with conducing a comprehensive assessment of the National Institutes of Health (NIH) pediatric research portfolio. The bill…
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Coalition Responds to Request for Input on NIH Modernization

The Coalition for Pediatric Medical Research today submitted a response to the request for input from Senate HELP Committee Ranking Member Sen. Bill Cassidy seeking ideas for modernizing the National Institutes of Health. The Coalition hopes this information is useful to ensure child health research needs are addressed appropriately through any modernization effort. The full…
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Coalition Applauds National Academies’ Study & Recommendations to Support Pediatric Researchers

The Coalition for Pediatric Medical Research applauds the National Academies of Science, Engineering and Medicine for its report issued last month on the pediatric subspecialty workforce that includes an entire chapter focused on the specific challenges and needs within the pediatric physician-scientist workforce. The report included several findings as well as recommendations, including a call…
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Coalition Applauds Senate Appropriations Committee for Including Strong Pediatric Research Provision in FY 24 Report

The Coalition for Pediatric Medical Research applauds the Senate Appropriations Committee for including language within the Fiscal Year 2024 Labor, HHS and Education spending bill report to advance pediatric medical research. Specifically, the FY 24 report language (below) includes funding for the National Institutes of Health (NIH) to engage the National Academies of Science, Engineering…
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Coalition Applauds Reintroduction of Bipartisan Bill to Enhance Support for Early-Career Pediatric Medical Researchers

Washington (July 21, 2023) – The Coalition for Pediatric Medical Research, which consists of about two dozen of the nation’s most research-intensive children’s hospitals, applauded the recent reintroduction of the bipartisan and bicameral Pediatricians Accelerate Childhood Therapies Act (S. 2345 and H.R. 4714) which will strengthen National Institutes of Health (NIH) programs to support early-stage…
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Coalition Issues White Paper and Recommendations to Inform ARPA-H Operations

The Coalition for Pediatric Medical research prepared a white paper, including a set of recommendations, to inform the operations of the recently constituted Advanced Research Projects Agency – Health (ARPA-H). The Coalition developed the white paper to help ensure the agency is not structured in a way that it limits opportunities on child health research…
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