Taking Action
The Coalition supports both federal legislation as well as regulatory or agency actions to strengthen laws, policies and programs that support pediatric research.
A primary priority at present is preventing significant destabilization and disruption to child health research activities that would come about from harmful changes to the longstanding approach to establishing federal facilities and administration (F&A) cost rates and other changes occuring within the National Institutes of Health.
Other more specific priorities include:
- Supporting the National Academies of Science, Engineering and Medicine (NASEM) in discharging its current study into NIH's approach to support pediatric research.
- Advocating for appropriate inclusion of child health research components within larger research initiatives including the All of Us Precision Medicine Research Program and the work of the Avanced Research Projects Agency for Health (ARPA-H).
- Strengthening support for programs that train early-career researchers focusing their careers in child health, including preserving longstanding and highly successful training programs.
